Tuesday, July 25, 2017

Lack of knowledge about hemophilia in India, IMA

Lack of knowledge about hemophilia in India, IMA
Though it is not a disorder that kills, adequate care must be taken to curtail bleeding in any form.

New Delhi, 24 July 2017: According to a recent study, about half of the world's hemophilia population lives in India. Further, about 70% of those with this disorder don’t have adequate knowledge or access to treatment. Apart from this, there are about 16,000 registered patients suffering from hemophilia in the country. However, studies indicate that the number could be seven times more.

A genetic and life-threatening bleeding disorder, in hemophilia, the blood does not clot normally due to the absence of clotting proteins called factors, when there is an injury or a cut. Provided care is taken, recurrent and prolonged bleeding into joints and muscles can even lead to permanent disability and at times, death.

Speaking about this, Padma Shri Awardee Dr K K Aggarwal, National President Indian Medical Association (IMA) and President Heart Care Foundation of India (HCFI) and Dr RN Tandon – Honorary Secretary General IMA in a joint statement, said, “What is peculiar about the transmission of hemophilia is that only males suffer from it and females are only carriers. It is not a killing disorder unless the bleeding extends into a vital organ. However, it can severely cripple a person due to all the pain. There is no known cure for this disorder. About a third of new cases are caused due to a new mutation of the gene in the mother or the child. In such cases, there need not be a previous history of hemophilia in the family. Women with the hemophilia gene can pass it on to their children. In cases where the mother is a carrier and the father does not have the disorder, there is a 50% chance of the male child having hemophilia and 50% chance of the female child being a carrier.”

Hemophilia is of three types: A, B, and C and the difference between the three lies in the deficiency of a specific factor. One should see a doctor in case the following symptoms show up: a severe headache, repeated vomiting, neck pain, blurred or doubled vision, extreme sleepiness, and continuous bleeding from an injury.

Adding further, Dr Aggarwal, said, “In pregnant women, there is no way of knowing whether the baby has the condition. For women, whose eggs are fertilized in a clinic using in vitro fertilization, this condition can be tested for and the eggs without hemophilia can be implanted. Preconception and prenatal counseling can help in understanding the risk of having a baby with hemophilia.”
It is possible to live with hemophilia and manage the condition with the following tips.
Get physical activity Adequate physical activity can help maintain body weight and improve muscle and bone strength. However, those with hemophilia should avoid physical activity that can cause injury and resultant bleeding.

Avoid certain medications Avoid blood-thinning medication such as warfarin and heparin. It is also better to avoid over-the-counter medicines like aspirin and ibuprofen.

Maintain dental hygiene Clean your teeth and gums thoroughly. Get tips from your dentist on how to do this without making the gums bleed.


Get yearly checkups and vaccinations Get tested regularly for blood infections and get your doctor’s advice on hepatitis A and B vaccinations.

4 comments:

  1. I am Sophie from Canada, I once suffered from a terrible and chronic hemophilia ,since 8 years now , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs kate on how his husband was been cured from hemophilia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help

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  2. I am Sophie from Canada, I once suffered from a terrible and chronic hemophilia ,since 8 years now , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs kate on how his husband was been cured from hemophilia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help

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  3. Thanks to Dr Williams I am so happy today, my wife have been suffering from hemophilia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to get my wife out of this , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after she took his medication as instructed, my wife is now completely cure from hemophilia within those week of usage, i am so much happy, thanks to Dr Williams for helping me get my wife life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have someone with hemophilia you can email him on drwilliams098675@gmail.com for more information .

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  4. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM HEMOPHILIA .
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from hemophilia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her hemophilia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from hemophilia. and now she very mush okay without any side effects whatsoever, If you have hemophilia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

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